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International Palliative Care Family Carer Research Collaboration (IPCFRC)

About the IPCFRC


The World Health Organization recommends that family carers of people requiring palliative care should be offered optimal support from health and social care professionals.  However there is a shortage of evidence based strategies to support family carers.  Also, there are only a small number of researchers who are focusing specifically on family carer research in palliative care and limited research funding opportunities.

The purpose of the IPCFRC is to develop a strategic approach to palliative care research planning related to family carers of people requiring palliative care via establishing international partnerships and promoting information exchange.

The inaugural meeting of the International Palliative Care International Family Carer Research Collaboration (IPCFRC) occurred at the European Association of Palliative Care Research Congress in Italy (2006).

To become a member of the IPCFRC and receive our newsletter, please click here.


To improve evidence based support provided to family carers of palliative care patients


To foster interdisciplinary and international research that focuses on improving support to family caregivers of palliative care patients.


  • Collaboration and Innovation
  • Knowledge influencing practice
  • Accountability and transparency
  • Sustainability
  • Social, Ethical and Cultural Responsibility
  • Effective Communication
  • Recognition of Achievement

Strategic outcomes

  • Communicate opportunities for research funding and conferences
  • Foster opportunities for international research partnerships
  • Increase membership
  • Maintain a data base of family carer publications & resources
  • Seek funding to support IPCRFC administration costs

IPCFCRC brochure

Collaborators and Governance

The IPCFRC operates under the auspices of the European Association of Palliative Care. In addition, the IPCFRC actively considers formal collaborations with other institutions (from all continents) and welcomes financial contributions in order to foster its mission.

The IPCFRC would like to formally acknowledge the following institutions that have provided funds* and/or 'in kind' contributions to assist in the establishment of the collaboration:

Centre for Palliative Care, St Vincent's and The University of Melbourne (Australia);
Centre for Palliative Care Foundation (Australia)*;
St Christopher's Hospice (United Kingdom*); and
International Observatory on End of Life Care, Lancaster University (United Kingdom).

Executive Committee Members

The executive committee’s role is to oversee the strategic direction of the IPCFRC and implement an operational plan.






Professor of Palliative Care

The University of Manchester


ALVARIZA (nee Henriksson), Anette

Specialist Nurse in Cancer Care

Ersta Sköndal University College


HUDSON, Peter (Chair)

Director, Centre for Palliative Care

St Vincent's Hospital &The University of Melbourne



Chief Medical Officer, University of Colorado Hospital;
Professor of Medicine;
Associate Dean for Clinical Affairs

University of Colorado School of Medicine



Professor, School of Nursing and Centre on Aging;
Associate Director, Research and Scholarship;
Research Scientist, End of Life Program, Fraser Health Authority

University of Victoria


TANG, Siew Tzuh Professor, School of Nursing

Chang Gung University


Ex Officio





PAYNE, Sheila

Co-Director of the International Observatory on End of Life Care, Division of Health Research,
Faculty of Health and Medicine, Furness College

Lancaster University



The advocates role is to promote IPCFRC in their region and make recommendations to the executive committee.

Name Position/ Role Organisation  Country
FERRELL, Betty Director and Professor, Nursing Research and Education City of Hope USA
HANSON, Elizabeth Professor, Department of Health & Caring Sciences Linnaeus University (LU) Sweden
HARDING, Richard Reader in Palliative Care

King's College London,
Faculty of Life Sciences and Medicine; Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation

PARKER, Deborah Professor and Director, Centre for Applied Nursing Research University of Western Sydney Australia




The University of MelbourneSt. Vincent's Hospital Melbourne