About the Program
Mission
To develop a strategic approach to palliative care research planning related to family carers of people requiring palliative care via establishing international partnerships and promoting information exchange.
Objectives
1. Promote:
(a) International opportunities for interdisciplinary research collaboration and publications; and
(b) Opportunities for international research visits/exchanges amongst members.
2. Communicate:
(a) Outcomes of recent family carer research studies (including methodological insights); and
(b) Opportunities for research funding.
3. Develop:
(a) Consensus based priorities for family carer research;
(b) Strategic alliances and possible avenues for ongoing financial support;
(c) Educational resources for family carers;
(d) Overview of family carer related interventions;
(e) Reference library data base of family carer publications (articles, books & resources); and
(f) Overview of family carer related research instruments.
4. Foster partnerships with key research groups, policy makers, carer advocacy/consumer groups and service delivery planners.
5. Provide mentorship for developing family carer researchers.
6. Lobby relevant organisations for enhanced services/supports for family carers.
Collaborators and Governance
The IPCFRC operates under the auspices of the European Association of Palliative Care. In addition, the IPCFRC actively considers formal collaborations with other institutions (from all continents) and welcomes financial contributions in order to foster its mission.
The IPCFRC would like to formally acknowledge the following institutions that have provided funds* and/or 'in kind' contributions to assist in the establishment of the collaboration:
- Centre for Palliative Care Education & Research, St Vincent's and The University of Melbourne (Australia);
- Centre for Palliative Care Foundation (Australia)*;
- St Christopher's Hospice (United Kingdom*); and
- International Observatory on End of Life Care, Lancaster University (United Kingdom).
The activities of the IPCFRC are currently overseen by a Steering Committee comprising members from Canada, United States, United Kingdom, Africa and Australia and the intention is for a Board of Management to be established in due course.
Steering Committee Members
|
Name |
Position/Role |
Employer |
Country |
|
FIRTH, Pam |
Head of Family Support |
Isabel Hospice |
UK |
|
GRANDE, Gunn |
Lecturer |
The University of Manchester |
UK |
|
HENRIKSSON, Anette |
Specialist Nurse in Cancer Care |
Orebro University |
Sweden |
|
HUDSON, Peter |
Director, Centre for Palliative Care Education & Research |
St Vincent's Hospital & The University of Melbourne |
Australia |
|
PAYNE, Sheila |
Help the Hospices Chair in Hospice Studies |
Lancaster University |
UK |
|
STAJDUHAR, Kelli |
Assistant Professor, School of Nursing and Centre on Aging |
University of Victoria |
Canada |
|
TENO, Joan |
Professor of Community Health and Medicine |
Brown Medical School |
USA |
|
POWELL, Tony |
Monitoring & Evaluation and Research Manager |
African Palliative Care Association |
Uganda |
|
KUTNER, Jean |
Professor of Medicine, Divisions of General Internal Medicine (GIM), Geriatric Medicine, and Health Care Policy and Research |
University of Colorado |
USA |
|
GONZALEZ-MARANA, Maricarmen |
Psycho-oncologist |
Oncology Center, Medicasur Hospital |
Mexico |
